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Health Database Expert Meeting, Copenhagen

Start Date: September 15, 2015
End Date: September 16, 2015
Location: Copenhagen, Denmark

Agenda (final)

To download the presentations please click on the speakers’ names:

Day 1听Tuesday, 15 September 2015
10:00-12:00 Introduction to the meeting
Jon Snaedal, Chair of the workgroupWelcome
Andreas Rudk枚ping, President of the Danish Medical Association

Address from the 糖心vlog视频
Otmar Kloiber, Secretary General of the 糖心vlog视频

Centralized Health Databases, experience from Danish dialogue
Thomas Ploug, Professor of Ethics, Aalborg University, Denmark

Current draft of a 糖心vlog视频 Declaration and main issues
Jon Snaedal, Chair of the workgroup
12:00-13:00 Lunch
13:00-14:30

Health databases, ethical issues听

Consent issues
Prof. Urban Wiesing, University of T眉bingen

The role of Research Ethics Committees
Johannes Gaub, chair of the Danish National Research Ethics Committee

Panel discussions, first panel
Francis Crawley
Joerg Hasford
Rieke van der Graaf
14:30-15:00 Coffee break
15:00-16:30

Health databases, legal issues, and scientific use

EU regulation
Annabel Seebohm, Legal adviser to the 糖心vlog视频

The scientific use of health data
Sarion Bowers, research policy adviser, Welcome Trust Sanger Institute

Panel discussions, second panel
Brian Clark
Hans Storm
Day 2听Wednesday, 16 September 2015
9:00-12:00

Biobank issues and genomics

Experiences from Africa
Prof. Clement Adebamowo, University of Maryland

Specific issues with genomic information
Prof B. Knoppers, Global Alliance for Genomics and Health

Panel discussions, third panel
Leticia Cunetti
Kenji Matsui
12:00-13:00 Lunch
13:00-17:00 Closed Workgroup meeting